The IPWSO Blog
News, views, thoughts from the International PWS Organisation.
Sunday, 6 October 2019
There's nothing like it
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It has been a while since I posted anything about my daughter. She has just celebrated her 35th birthday. She was diagnosed when she was ...
Sunday, 2 June 2019
My Double Life!
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MY DOUBLE LIFE AS A SWEDE/ENGLISHMAN WITH PRADER-WILLI SYNDROME (Anders' mother, Jean Phillips Martinsson, was IPWSO's first ...
Thursday, 2 May 2019
The forgotten face of PWS?
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May is PWS Awareness month and every year we bring the world's attention to this syndrome. Our syndrome. We write positive ...
Friday, 5 April 2019
Sexuality in PWS
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I often hear the question about whether women with PWS can have babies. The answer is, yes, they can, but it is not common. Babies to w...
Thursday, 28 March 2019
Blind Rage
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Contributed by Dr Janice Forster Dr Janice Forster, Pittsburgh Partnership PWS is known for hyperphagia and temper outbursts. Re...
Monday, 12 November 2018
From Ireland to Munich
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Gina Mullis is a Kiwi, living and working in Ireland. This was her first experience of a PWS conference and she writes... I was v...
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