A collaboration of the PWS Association (USA), the Angelman Syndrome Foundation Inc, and the International Rett Syndrome Foundation as a genetic partnership, has developed a videotape of Dr Paige Powell's presentation on "Parental Stress when your Child has a Developmental Disorder: Helpful TIps and Coping Strategies. The link to this is:
Any family with a child whose behaviour is challenging, will find this video of coping stragegies and helpful tips, extremely useful. So often we forget how important it is as the primary caregiver to look after ourselves first.
Further information on Rett Syndrome & Angelman Syndrome can be found through these links: