My
name is Katherine Stanley and I have PWS. Last year, I wrote a book called A BOOK OF BULLIES. Some of you may have
heard of my book, or even read it. I wrote the book because I was bullied and
ridiculed in school. Was I bullied because I have PWS and I am different from
my peers? Yes, I think that was part of it, but I saw many other people without
disabilities being bullied and some with disabilities who were not bullied. I
learned many things from my bad experiences and I wanted to share what I had learned.
I also wanted to turn those bad experiences into something good, so I wrote the
book. Writing the book and having it published has also taught me many things,
and I want to share those things with you now.
I
began thinking about writing a book to talk about the hurt and harm of bullying
when I was in middle school at about 12 years old. I wanted to tell people that
it is not OK to act like that and I also wanted to encourage people to be
kinder to each other. Whenever I would mention that I wanted to write a book, I
could tell that people did not think that I would be able to do it. I thought
about that book and practiced my writing skills for years. Finally, when I was
16 years old I began writing it.
I had discovered in my 10th grade
English class that I enjoyed writing in rhyme, so I started writing rhymes
about bullies and the next thing I knew, I had the book written. Even though
most people did not have any confidence in my ability, my family did. My
parents and my sister read my rhymes and encouraged me. My sister drew
illustrations for each poem. My mom helped by finding a local children’s book
author to advise me. We were invited to a fund raiser for Grateful Steps
Publishing, and when I met Micki Cabaniss, the head of that company, I told her
I was an aspiring author and I recited excerpts from the book for her. Since I
had spent so much time writing and re-writing that book, I knew it by heart and
it was easy to recite. There were other authors there talking about their work,
and when I was asked if I would like to speak about my book, I said “YES!” That was the first time I did any public
speaking, and I loved it! I was given an appointment to meet at the publishers
office, and in less than a year my book was in print. I was officially a published
author and that made me very happy and proud of myself.
This
has been a wonderful experience for me and I have learned so much. One thing
that I have learned that I want to share with everyone is BELIEVE IN YOURSELF.
As I said before, not many people thought I would be able to write a good book
and get it published. If I had believed those people, I would not have even
tried to write a book. Another thing
that I have learned is the POWER OF BEING PROUD OF WHO YOU ARE. When you find
what you love to do, and do your very best, it makes you proud. When you
overcome obstacles it also makes you proud. Those of us with PWS have many
obstacles to overcome – sometimes we will succeed and sometimes we will fail –
but we should never give up. When you are proud of yourself, nothing a bully
says can make you feel worthless. If you are the family of someone with PWS
please give your loved one the benefit of the doubt before you decide that they
can’t do something. Help them, encourage them and believe in them. I have
needed a great deal of help with the business side of this book. I like to
write, but I am not good at business yet, but I am learning. My mom always told
me that I was smart. She always said that I had beautiful thoughts, and I
believed her. She convinced me that I had something to say that people need to
hear. My family encouraged me and helped me to have self control and self
esteem. I am writing other books that I hope to have published in the future. I
am also writing song lyrics. All of my books and songs will have a positive
message. I intend to use my voice in every way I can to make the world a better
place.
Life
is not easy for a person with PWS. We have food issues, emotional issues and
limitations – but we also have a purpose in this world. All my life I will have
to struggle with the difficulties that my genetics have caused me, but I am
just the way GOD made me, and I love my life.
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