Monday, November 12, 2018

From Ireland to Munich


Gina Mullis is a Kiwi, living and working in Ireland.   This was her first experience of a PWS conference and she writes...

I was very fortunate to be given the opportunity to attend the IPWSO 5th International Caregiver’s Conference in Munich this year.  It was my first time attending and I was unsure of what to expect.  Having had little direct experience of working with individuals with Prader-Willi Syndrome (PWS) and their families I hoped to get a broad understanding of the syndrome from a clinical perspective and insights from others already working in the field with respect to evidence-based best practice approaches to providing therapeutic supports and interventions. 

The two group workshops I attended on Early Intervention and Aging in People with PWS did give me the broad understanding that I was hoping for at the outset by providing valuable information on the ways in which clinical staff can best support the social, emotional, and cognitive development of individuals with PWS throughout the lifespan.  However, the greater insights came out of discussions with parents and care staff working with and caring for individual’s with PWS, all of whom were incredibly generous in their willingness to share their own personal experiences.    

Resilience Care are in the process of setting up a residential home here in Ireland specifically for individual’s with PWS and I feel confident and enthused about my role in this enterprise as a result of the knowledge gained and the relationships established at the IPWSO Caregiver’s Conference.  I look forward to developing the professional and personal relationships we established at the conference through ongoing dialogue (thank you Norbert and Hubert for the word) and sharing of information and experiences, and can’t wait to see you all again next year in Cuba.

Kiwis may be flightless birds, but these two found their way to Munich from opposite sides of the world!
 
          Linda Thornton & Gina Mullis

9 comments:

  1. Replies
    1. Hello everyone, I want use this opportunity share some thought about GENITAL HERPES in case you have someone suffering from it, my thought on this, is that you can get some herbs that can cure this disease, I have seen it work and I'm confident to recommend it to you today and to get the herbs for GENITAL HERPES contact Dr Ekpen via: (ekpentemple@gmail.com) or via whatsapp +2347050270218

      Delete
    2. ADD DR PERFECT ON WHATSAPP +1 (256)-251-3614 AND GET A CURE TO ANY TYPE OF DISEASES AND VIRUS

      I'm so happy and excited to give my testimony of how I was cure of herpes virus. I'm Karen Wilson from Paris France I was diagnosed with herpes virus for 6 years, I took every drugs prescribed to me by the doctors but there was no positive result, so I decided to try if I can find a cure for my herpes online and I saw different people's comments on how Dr Perfect helped them to cure their diseases and viruses I message him urgently on WhatsApp it's didn't take long he replied my message and we talked on how I can get the cure and he told me he will send the cure to me, in four days time the cure was delivered to my house and he gave me instruction on how I will use it, 17 days later there was no sign of herpes in my body then I went for test and the doctor told me he couldn't find any sign of herpes virus in my blood. Dr Perfect herbal cure is the best don't think because he cured me of herpes virus and you are diagnosed with Hepatitis or other virus he can't cure you, Dr Perfect can cure all types of diseases and virus. If you need a cure for your disease and virus WhatsApp him +1 (256)-251-3614 if you are not on WhatsApp email him at solutiontoallproblems1@gmail.com

      Delete
  2. I was cured of HIV with the used of natural herbs. My name is luci amber and am from US. I love herbs so much. Most times, injection and drugs are just a waste of time. I was cured 8 months ago, i suffered from HIV for 13 yrs but with the help of Dr.Nana herbal medicine, i was cured within few weeks of drinking the herbs he sent to me through courier delivery service. This same doctor also cured my Aunty from herpes, as soon as i heard she had herpes, i quickly refer her to Dr.Nana and she was cured too after drinking his herbs.I have referred more than 15 persons to Dr.Nana and they were all cured from their various illness. Have you taken herbs before?. You have spent so much money on drugs,injections,surgeries etc and yet you have no good result to show for it. Contact Dr. Nana now, he is a herbalist doctor, i assured you of a cure if you drink his natural herbs. Dr.Nana have herbs that cures Hiv, Herpes, diabetics, asthma, hepatitis, HBP, STD, cancer, chronic, etc. Contact Dr Nana through his Email address on: drnanaherbalsolutionhome@gmail.com or WHATSAPP/CALL him on+2347014784614. Please share the good news to other people once you are cured




    I was cured of HIV with the used of natural herbs. My name is luci amber and am from US. I love herbs so much. Most times, injection and drugs are just a waste of time. I was cured 8 months ago, i suffered from HIV for 13 yrs but with the help of Dr.Nana herbal medicine, i was cured within few weeks of drinking the herbs he sent to me through courier delivery service. This same doctor also cured my Aunty from herpes, as soon as i heard she had herpes, i quickly refer her to Dr.Nana and she was cured too after drinking his herbs.I have referred more than 15 persons to Dr.Nana and they were all cured from their various illness. Have you taken herbs before?. You have spent so much money on drugs,injections,surgeries etc and yet you have no good result to show for it. Contact Dr. Nana now, he is a herbalist doctor, i assured you of a cure if you drink his natural herbs. Dr.Nana have herbs that cures Hiv, Herpes, diabetics, asthma, hepatitis, HBP, STD, cancer, chronic, etc. Contact Dr Nana through his Email address on: drnanaherbalsolutionhome@gmail.com or WHATSAPP/CALL him on+2347014784614. Please share the good news to other people once you are cured

    ReplyDelete
  3. Hello everyone, am very happy to share this little awesome testimony about Dr olu a great herbal doctor who help me enlarge my penis size.3.2 cm to 8.3 cm longer with his herbal cream mixture, my girlfriend is now so amazed with the autonomous size of my penis , if you you are also in need of help on how to enlarge your penis to become bigger and stronger I adverse you to contact Dr on his email (drolusolutionhome@gmail.com) ) you or contact on whatsapp number +2348140654426 because he is one of the best herbal doctor that i can only show you up to, if your penis is 4.2 cm and want to get it reach 9.2 cm within three weeks i Dr olu is also specialized on obeo m breast and boobs enlargement i advise you to contact him for help




    Hello everyone, am very happy to share this little awesome testimony about Dr olu a great herbal doctor who help me enlarge my penis size.3.2 cm to 8.3 cm longer with his herbal cream mixture, my girlfriend is now so amazed with the autonomous size of my penis , if you you are also in need of help on how to enlarge your penis to become bigger and stronger I adverse you to contact Dr on his email (drolusolutionhome@gmail.com) ) you or contact on whatsapp number +2348140654426 because he is one of the best herbal doctor that i can only show you up to, if your penis is 4.2 cm and want to get it reach 9.2 cm within three weeks i Dr olu is also specialized on obeo m breast and boobs enlargement i advise you to contact him for help


    ReplyDelete
  4. It is no secret that I have a very deep and personal relationship with God. I have pushed and resisted that relationship this past year through all the bullshit I have had to go through living with Herpes but once again, God is bigger than my stubbornness and broke through that outbreak cold sore and all I had Genital Herpes. For me personally, hearing over and over how I am not good enough has really invaded my mind in the worst way possible. I completely shut down and I was just waking up like is this how life going to end this temporary herpes outbreak “fuck everybody with herpes if you know what I mean” but let's be honest here...It is a cowardly to say no to herbal medicine. It is fear based. And it is dishonest to what my heart wants. Don't build a wall around yourself because you are afraid of herbals made or taking a bold step especially when it's come to health issues and getting cure. So many young men/ women tell me over and over that Dr Itua is going to scam me but I give him a try to today I feel like no one will ever convince me about herbal medicine I accept Dr Itua herbal medicine because it's cure my herpes just two weeks of drinking it and i have been living for a year and months now I experience outbreak no more, You can contact him if you need his herbal medicine for any such diseases like,HIV,Epilepsy Infertility, Herpes, Hepatitis, Schizophrenia,Cancer,Fibromyalgia,Fluoroquinolone Fibrodysplasia Ossificans Progressiva.Dupuytren's disease,Desmoplastic,Diabetes ,Coeliac disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Sclerosis,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic, Love Spell,. Email..drituaherbalcenter@gmail.com then what's app.+2348149277967.... My advice to any sick men/women out there is simple... Be Always an open book. Be gut wrenching honest about yourself, your situation, and what you are all about. Don't hold anything back. Holding back will get you nowhere...maybe a one way ticket to lonelyville and that is NOT somewhere you want to be. So my final truth...and I'm just starting to grasp this one..

    ReplyDelete
  5. I am bold enough among many others to state that there is now a potent cure to this sickness but many are unaware of it. I discovered that I was infected with the virus 3 months ago, after a medical check-up. My doctor told me and I was shocked, confused and felt like my world has crumbled. I was dying slowly due to the announcement of my medical practitioner but he assured me that I could leave a normal life if I took my medications (as there was no medically known cure to Herpes). I went from churches to churches but soon found that my case needed urgent attention as I was growing lean due to fear of dying anytime soon. In a bid to look for a lasting solution to my predicament, I sought for solutions from the herbal world. I went online and searched for every powerful trado-medical practitioner that I could severe, cos I heard that the African Herbs had a cure to the Herpes syndrome. It was after a little time searching the web that I came across one Dr Itua(A powerful African Herbal Doctor), who offered to help me at a monetary fee. I had to comply as this was my final bus-stop to receiving a perfect healing. My last resolve was to take my life by myself, should this plan fail. At last it worked out well. He gave me some steps to follow and I meticulously carried out all his instructions. Last month, to be precise, I went back to the hospital to conduct another test and to my amazement, the results showed that negative,Dr Itua Can As Well Cure The Following Desease…Cancer,Hiv,Herpes, Hepatitis B,Liver Inflammatory,Diabetis,Fribroid,,Non Hodgkin Lymphoma,Skin Cancer,Uterine Cancer,Prostate Cancer Dercum,Infertility,fibromyalgia,Get Your Ex Back,Als,SYPHILLIS,Genetic disease,Epilepsy, Parkinson's disease..You can free yourself of this Herpes virus by consulting this great African Herbal Doctor via this e-mail: drituaherbalcenter@gmail.com or call and whatsapp him on +2348149277967 He will help you and his herb medication is sure. he has the cure on all disease .You can talk to me on INSTAGRAM..tashamoore219....

    ReplyDelete
  6. ADD DR PERFECT ON WHATSAPP +1 (256)-251-3614 AND GET A CURE TO ANY TYPE OF DISEASES AND VIRUS

    I'm so happy and excited to give my testimony of how I was cure of herpes virus. I'm Karen Wilson from Paris France I was diagnosed with herpes virus for 6 years, I took every drugs prescribed to me by the doctors but there was no positive result, so I decided to try if I can find a cure for my herpes online and I saw different people's comments on how Dr Perfect helped them to cure their diseases and viruses I message him urgently on WhatsApp it's didn't take long he replied my message and we talked on how I can get the cure and he told me he will send the cure to me, in four days time the cure was delivered to my house and he gave me instruction on how I will use it, 17 days later there was no sign of herpes in my body then I went for test and the doctor told me he couldn't find any sign of herpes virus in my blood. Dr Perfect herbal cure is the best don't think because he cured me of herpes virus and you are diagnosed with Hepatitis or other virus he can't cure you, Dr Perfect can cure all types of diseases and virus. If you need a cure for your disease and virus WhatsApp him +1 (256)-251-3614 if you are not on WhatsApp email him at solutiontoallproblems1@gmail.com

    ReplyDelete