Blogging from IPWSO

We thought we would start a blog for IPWSO, just to let you know what we are doing, who is doing it, where they've been, and what IPWSO is doing for the world.  For anyone stumbling across this blog, IPWSO stands for the International Prader-Willi Syndrome Organisation and you will find more about us on our website: http://www.ipwso.org/

Contributions will come in from all of us who work for IPWSO, and if anyone would like to send us their thoughts on anything to do with PWS, please send them straight to me for publication:  linda.thornton@xtra.co.nz.  I'm the Secretary for IPWSO and this is part of my work.  We hope you will enjoy our blogs.  We have had a busy year so far for 2010 with much preparation going into our 7th International PWS Conference which was held in Taipei, Taiwan.  Our international conferences are always a great experience, particularly as we have a wonderful mix of professionals and experts, along with parents, caregivers, and the people with PWS themselves.  This makes us into one huge global family; we get to know one another very well, and by sharing our knowledge, experience, and enjoying ourselves, we form a great network of support around the world.  So, I'm looking forward to hearing from you and to sharing more of our work, ideas, and thoughts.